It has been a stressful time at our house as of late. A few weeks ago, Jayden woke up one morning just acting really weird. She had a blank expression on her face and was just being weird. It took her about 2 minutes to process something we had said to her. I just chalked it up thinking that she probably had a seizure that morning. (For those of you who don't know, Jayden has a form of epilepsy that causes her to have seizures in her sleep.) She went to school as normal and she was playing in the semi final championship soccer game after school. She said during school it felt like she was getting a migraine except for seeing spots before the headache came, everything went dark and fuzzy. The headache came and then she took some ibprofen. During the game she started freaking out, her arm was going numb. By the end of the game both arms were numb and "tingling" and within an hour both of her legs were numb and tingling too. Over the course of the next 3 days we went to 3 different doctors who told us 3 different things. As the week wore on, Jayden's muscle strenth was diminshed and she became more and more lethargic. Her mood swings were all over the place. By Friday we had an MRI done and the following Thursday we had an appointment with a fantastic neurologist at Primary Childrens. The neurologist doesn't feel like these symptoms were the cause of a complex migraine (the er doctor's diagnosis) or lingering effects from a seizure (the instacare doctor's theory.) Although she is taking things slow, her initial diagnosis is MS. She is giving Jayden 2 weeks to see if the numbness and tingling stops. If they don't, our next step is an MRI of the spine and a possible spinal tap. We have started on a vitamin D supplement and hope that this is all the medication we will need to take for quite a while. Although we are all scared, we trust the neurologist completely. She is a very smart lady who really takes her time and doesn't want to rush into anything. The course of treatment would not change regardless of the diagnosis.
In a few short days we went from this:
To this:
We know that our Heavenly Father is aware of our family at this time and we feel his love so abundantly. Thank you to all of our friends and family who have been so supportive of us!
I know I have blogged about my amazing boy Coleman before but he is truely the world's sweetest boy. Even when he was a baby my aunt said he was an "old soul" in a tiny body. It is so true. The day we went to the neurologist I picked up the kids from school. Coleman immediately got in the car and asked how Jayden was doing. I explained that they weren't sure but that it was potentially a disease that affected her nervous system. He held my hand and said, "How are you doing with all this mom? You must be devistated." Are you kidding me? What 10 year old boy says these kind of things. It was all I could do to not to break down right there. He is SO SWEET! We talked a bit about other diseases that could be so much worse and that we were really lucky in so many ways. He is amazing and I love that boy so much!
