Totally Freaking Out

I am totally freaking out right now!! Not only are we going to New York in 4 days but holy cow there is going to be a big change in our lives soon. I can't really give out the details right now but I am COMPLETELY AMAZED at our Heavenly Father's love for our family at this time. I cannot believe how perfectly everything is falling into place right now, it is unbelievable. I am so grateful for both my answered and unanswered prayers. I am in awe that my Savior is so mindful of my EVERY need. This could not be happening at a better time. Amazing....pretty much sums up this experience!

Love this girl

This girl makes me laugh so much! The other day she was going potty while Trent was in the shower. Trent got out to get dried off and Annabelle says while pointing to his mid section, "Uh Dad....is that your gentleman?" Awesome...

Annabelle's Birthday

This year for her birthday Annabelle only asked for stickers. Totally done!! I get so sick of picking up toys that stickers were fantastic. I did feel bad if that was all she was getting so we decided that we would spend the weekend as a family and rent a hotel room. We spent the weekend swimming in the pool, eating yummy food, and having a great time!

Ski Lessons

This year the kids all started ski/snowboard lessons. They all had such a great time and can't wait to go back next year!

Mr. Bundles

I figured it was time to try to update a bit of what has been going on in our life besides doctors! Our elementary school had their annual production this March. This year's production was "Annie Jr." Coleman played the part of Mr. Bundles and had a great time!! Way to go Coleman...we are so proud of you!!

Our Dislike for Primary Children's

I don't know if I have ever stated this before but I DESPISE PRIMARY CHILDREN'S HOSPITAL! Really, I think the hospital has a purpose for sick kids. Unfortunately for us, Primary Children's has been nothing but a headache for Jayden. Because she doesn't fit into their perfect mold of a known disease, everything she is feeling is dismissed by them. We did the EMG testing by Dr. Sakonju on Thursday. My favorite quote of the day was as she turned to the doctor in training, "Oh...this is real!" Like they had been thinking this whole time that she was just faking it! Unfortunately again, although they saw abnormailities, when they averaged all the tests together, it was "within the realm of normal". Dr. Sakonju told us to follow up with our neurologist. Um...ma'am...that would be you!! She pulled the results again and said that her parasympathetic nervous system is on hyperdrive and her autonomic nervous system is on slow mo. That we just need to get her into bio feedback counseling and then those two systems should correct themselves. Lately, Jayden has been complaining about having a sharp pain in her hand. I noticed that part of her hand was swollen but just kinda put that in the back of my head. She has been complaining about a sharp pain down her leg and I noticed that in the exact spot, her leg is swollen. It is so frustrating when as a mom I KNOW something is wrong but because she doesn't fit all the classic symptoms of any known disease her symptoms are dismissed.
We have tried everything, spending thousands of dollars on accupuncture, holistic doctors, chiropractors, vitamins, as well as any doctor we can get into! We sure are hoping that New York has some answers for us!

New Week, New Hope

This week has gone by in a blur. I was in a meeting on Monday when my phone kept vibrating. I looked at my phone when I was done and I had 5 missed calls. 3 of them were from my friend Chelsea saying CALL ME BACK! So I did. Long story short, she ran into to some people who knew of another story like Jayden. I was able to get the dad's email address and emailed him all week long about our daughters. This other family is convinced that the vaccine gardasil is what caused their daughter's problems. She has been dealing with the same type of stuff for about 2 years and have yet to have any answers. He sent a bunch of links and some more detailed information. It has been eye opening for us to see what little we knew about a vaccine we gave to Jayden thinking it was for her good. Even if Jayden had no symptoms, If i knew then what I know now I never would have gotten the shots. I am not 100% convinced that gardasil is to blame but I am not ruling it out either. I will continue to fight for whatever I can to get her healthy again.
This week we got the results of her gastric emptying test back. Results were not good. If you don't know what happens during a gastric emptying test I will tell you. First you eat radio active eggs. (I know!!) Then they take a picture of your insides one hour later. The average person has 90% of the eggs left at that point. Jayden had 93% left. They take another picture at two hours and the average person has 60% of the eggs left, and Jayden had 79% left. At 4 hours the average person has 10% left and Jayden had 49% left. Basically her stomach is not emptying properly. The diagnosis given by the GI doctor is gastroparesis. This is a fancy word for a paralyzed stomach. The nerves are not telling the stomach to contract so that it can empty correctly. This goes along with the nerve disease theory but we are having an EMG test done tomorrow where they will test the rest of her nervous system.
We will see if that shows anything exciting. We are on some new meds and so far they aren't working yet. We tried to have Jayden go back to school last week but it has been really hard and draining for her. We are putting her back on home school for the rest of the year in hopes that she can get better quicker that way.