Yet Another Update

So much more to blog about...yet this is what is constantly on our mind! Jayden had her surgery this week and everything went as planned. Her surgery was on Tuesday and we arrived at the hospital at 9. We had to get some additional blood tests run for her GI doctor so we went to the lab and then headed to the cath lab. They put in her iv and did some more blood work and then waited for them to call her up. She went into surgery at about 11:30. She was back in in our room at about 12:45. Dr Sorensen came in and talked to us about her surgery. He said he puts one type of device in about 90% of his patients. He put that device in Jayden and then didn't like the way it looked so he pulled it out and put in a helix device. Her hole was about 25 mm, which is just a little over an inch. That is a pretty substantial hole for a little heart! She has been great, a bit disappointed that her bruise isn't bigger and her leg isn't more sore. Now that we have the heart under control, we need to work on her GI problems. She has lost about 30 pounds, 15 within the last 6 weeks. Her hair is falling out, her skin is becoming "sallow", and she feels like she is going to throw up every time she eats. We have been trying to get her in to see a GI doctor and finally got her to see a great one on Monday. He ordered some more tests and we will see what those tests reveal. Hopefully we can get some answers to get her to feel better soon!
I am so grateful to all our friends and family who have been so supportive of us during this time! I can't even begin to list all the nice things people have said and done for us. It is amazing how completely true the poem "Footprints in the Sand" is. I know our Heavenly Father has carried our family through this trying time in our
lives. I know we have and are continuing to learn things that we would have not been able to learn any other way. I am so grateful that He is aware of our every need.