Monday, January 30, 2012

Thanksgiving

I wish I had taken the time to take pictures but I didn't. This Thanksgiving we had dinner at Mark and Holli's. The best part of this Thanksgiving is that Mike and his kids came! It has been about a year since we had seen them so it was so fun to spend a few days with them! We had a big cousin sleepover the night before and I went with Mike and his kids to see a movie on Thanksgiving afternoon. It has been so neat to watch Mike change and be such an awesome uncle and dad. I haven't had a chance to get to really talk with Mike for a few years so it was so wonderful to be able to spend a few days with him!

Halloween 2011





This Halloween the girls both wanted to be Little Red Riding Hood and I'm not sure what we called Coleman....chicken man?
Wow...I'm such a loser at this blogging stuff. I have wonderful ideas and just not enough time to actually get it done! Ill start with what I can remember and work my way back to the present. I hope my kids will understand one day why I didn't document everything the way I wanted too!!
First I'll start with what has been happening in our lives. In October, after much turmoil, Trent and I seperated. It has been an adjustment for everyone but a much needed seperation for everyone. I want to make sure that whatever decision is made (divorce or reuniting) that we know it is the right thing for our family. I don't want to be an "intact" family for the sake of being together. I don't want a "broken" family because I feel like there is something better out there. I want to be able to say at the end of the road that I did what needed to be done and I feel good about my decision. The kids have been going to counseling for a few months to be able to talk about their feelings without hurting my feelings or Trent's feelings. Trent and I have been going to marriage counseling too and what I can say definitively that no matter what our family is the top priority.

Saturday, October 8, 2011

Sweetest Boy Ever




I don't blog enough about this sweet boy. He is truly the sweetest boy I have ever met. Let me give you a run down of yesterday with this awesome guy. In the morning I leave at 7:15 to take Jayden to school. I leave the girls home with Coleman and then come back at about 7:35 to finish getting the girls ready and then take Coleman and Chloe to school. I came home at the usual 7:35 to find Coleman unloading the dishwasher. Completely on his own. It was early day out and I am teaching on Friday afternoons so he rides his scooter to my school. He got to my school and then immediately got to work helping set out centers, getting Chloe ready for gymnastics and just being generally helpful. Later on, he was at his friend's house and I was picking him up. He took off my shoe and started to rub my feet!! I mean seriously, what 11 year old boy does that? After we got home, I was watching tv in my room and he came in to ask if I wanted a back rub while I was going to bed. Seriously the sweetest boy ever!!! I think I'll keep him :)

Monday, October 3, 2011

New Day....New Doctor

Today we met with Dr. Zalinski, the neurologist we saw last time Jayden was inpatient at Primary's. I liked him then, and I like him even more after today!
First of all, we didn't realize our appointment was at the Riverton hospital. We drove up to the main campus like we always do and I didn't think twice. We got to the clinic and then they told us that our appointment was at Riverton....oops! They called down to the Riverton clinic to say we were on our way. We got to our appointment about 15 minutes late and Dr. Zalinski came in almost immediately. What I love about him is that he LISTENS to everything I say. With Dr. Sakonju I felt like she had made up her mind about what the problem was long before we even got into the room. Dr. Zalinski listened, and pondered, and asked a few more questions, and listened some more.
We didn't come out with any miraculous answers but I just felt as if he actually heard what we were saying and agreed with us that it wasn't just Jayden being "crazy". He made recommendations but ultimately left the decision up to us and our doctor.
For now....we are going off the trileptal. He said he has never seen success with trileptal for neuropathy. (Nerve problems.) He said there are far better drugs for what we need. He suggested taking lots of time to really research and understand what each drug's effect is on Jayden. He suggested writing down how she is feeling each day (which I pretty much already do.) If after a few weeks there is no change, he suggests putting her back on the amnitriplyne. This drug should help Jaydee in a few different ways. First, it works well for neuropathy, second it works well for gastroparesis, third, it can help with her headache prevention, and last it will make her sleepy for bed. We tried this drug before but always with the combination of multiple other drugs.
If after a few weeks the amnitryptline isn't working enough, he suggested putting her on pregabalin as well. This has the same effect as the gabapentin without the side effects she had before.
He felt like the next step for us is to see a rheumatologist. I have felt that for some time but was told that without a postive test result that indicated this was rheumatology based that the doctor would not see us. Dr. Zalinski assured us that was not the case, and if our doc wouldn't give the referral that he would.
He also told us that the headaches Jaydee has been having he does not believe are migraines but are part of whatever she has. By giving her migraine meds with out the common migraine (and most likely she is having complex migraines) we are putting her at a strong risk for a stroke. That was news to me!! Needless to say,I will not be giving her any maxalt any time soon.
Like I said, nothing fantastic happened today but for once I felt like we were trying something new and that someone was listening to me. I haven't felt that for a few months so it was nice to feel like someone was willing to take another chance on her!

Wednesday, September 21, 2011

Homecoming Dance

This past weekend was Homecoming. Jayden was asked by a boy named James. Besides being sick, they had a pretty good time. They went to the Asian Star for dinner, then went to the dance, and then went bowling. We only spent 3 full days looking for shoes and 2 full days looking for jewelry but the end product was beautiful!



Wednesday, September 14, 2011

Mini Cheer camp

One of the greatest things about having a big sister cheerleader is mini cheer! Twice a year each high school does mini cheer camp as a fundraiser. This year Chloe and Annabelle were so excited to be cheering at half time during a televised game!! (Unfortunately, the camera crew didn't pick up on the best part of the football game) My girls banded together and invited a few of their friends to cheer with them. This lead to 14 excited little girls to cheer with Jayden. I think she was the cheerleader who had the most girls signed up for cheer camp. We can't wait to do it again during basketball season!