A breakthrough

So last weekend I was pretty upset. I felt like we had exhausted all of our resources and yet we still had no answers. After I calmed down, a thought came to me. Back in early December, before we knew about Jayden's ASD doctors had talked about the potential of an MS diagnosis. I researched everything I could about MS and found out that there are 6 Pediatric MS centers in the United States. I emailed every one I could and waited to hear back from them. In late December, I heard back from one and we kept missing communication. The center would call me and leave a message, then I would call back and leave a message. Eventually, I thought her problems were heart related so I just stopped trying to get a hold of anyone. In early February, a different center emailed me back saying they had switched over their email server and just barely retrieved my email. She said to get in contact with her if I still needed assistance. I just felt like her problems were all related to her heart so I didn't respond, but I didn't erase the email. Last weekend I thought, I should just try and see if they have anything to offer us. I emailed her late Friday night and didn't think I would hear anything for awhile. Well, to my surprise the social worker emailed me first thing on Monday morning. I was completely shocked. Whats more, is that within a few hours of that email, I was on the phone with her doing their 1 1/2 hour intake interview. I figured because all her MRI's were coming back clear and no one has mentioned MS for a while I figured they would tell me there was nothing they could do. She told me she would take our information to the board and get back with me on Wednesday. Well Wednesday came and she called me back. The board decided they would like to take on her case and assigned her to a neurologist named....Ann Yeh. (pronounced YAY!) Seriously? Is this a sign? It was all I could do not to burst out in song! Although we are going in through the MS clinic, we are being seen at the Jacob's Neurological Institute. They deal with all sorts or neurological disorders. We scheduled her clinic day to be May 5 and hung up for the day. I started looking at flights and places to stay. Well, Mary, the social worker, called me back on Thursday saying that she had been approached by the research team and they would like to have Jayden be seen in a research study. This means ALL of her testing (new MRI, etc.) is covered by the study. (They are an out of network provider for us, so even though we have met our out of pocket maximum we would still need to pay 20% of all testing while there.) What's more, they are setting us up at the Ronald McDonald house AND getting our flights for $50. I feel like we are finally going to see a neurologist who really wants to get to the bottom of all this AND is skilled in complex cases.
We did see a homeopathy doctor this week as well. He had some pretty interesting things to say and $550 later we felt like he might be onto something. Unfortunately 4 days later we haven't seen any progress. (He told us by day 3 she would be tons better.) We continue to take all the nasty pills and tinctures he gave us but we don't hold out as much hope as we did after leaving his office. He was really cool and did say some pretty cool things. Oh well, at least we have the good news about NY!!